Living with ALS
Jim_VA (Sep 30, 2009 6:00:49 PM)
RavenP99 (Sep 30, 2009 6:50:51 PM)
(This user has entered Living with ALS)
RavenP99 (Sep 30, 2009 6:51:02 PM)
hi
Jim_VA (Sep 30, 2009 6:51:10 PM)
Hi
RavenP99 (Sep 30, 2009 6:51:33 PM)
How are you?
Jim_VA (Sep 30, 2009 6:52:37 PM)
how are you i am fine ty
RavenP99 (Sep 30, 2009 6:54:09 PM)
trying to get to used to this hospital bed...had queen size bed,,down to this twin bed..yuk
RavenP99 (Sep 30, 2009 6:54:30 PM)
no room....afraid of falling off
Jim_VA (Sep 30, 2009 6:55:38 PM)
i know what you mean
Jim_VA (Sep 30, 2009 6:57:08 PM)
i cannot move anymore
RavenP99 (Sep 30, 2009 6:57:34 PM)
this morning..I ran out the house in my sport bra...and shorts,,,,it was 53 degrees,,,i said.YES~!!!!
RavenP99 (Sep 30, 2009 6:57:59 PM)
well maybe not {run}..but close
Jim_VA (Sep 30, 2009 6:58:38 PM)
lol
Jim_VA (Sep 30, 2009 6:59:36 PM)
where are you
RavenP99 (Sep 30, 2009 7:00:03 PM)
Florida
Jim_VA (Sep 30, 2009 7:02:20 PM)
i am heading there the 17
RavenP99 (Sep 30, 2009 7:02:27 PM)
cool
Jim_VA (Sep 30, 2009 7:08:02 PM)
supposed to be in the 40's tonight \
RavenP99 (Sep 30, 2009 7:08:29 PM)
58 here
RavenP99 (Sep 30, 2009 7:08:45 PM)
75 right now
Jim_VA (Sep 30, 2009 7:09:57 PM)
that is great
pete46 (Sep 30, 2009 7:11:45 PM)
(This user has entered Living with ALS)
pete46 (Sep 30, 2009 7:12:00 PM)
hello
Jim_VA (Sep 30, 2009 7:13:01 PM)
i Pete
pete46 (Sep 30, 2009 7:13:17 PM)
hi jim
pete46 (Sep 30, 2009 7:13:40 PM)
hi raven the hockey fan :)
pete46 (Sep 30, 2009 7:14:44 PM)
hows everybody tonite?
RavenP99 (Sep 30, 2009 7:15:23 PM)
good\
pete46 (Sep 30, 2009 7:15:39 PM)
glad to hear it
RavenP99 (Sep 30, 2009 7:16:24 PM)
how about yourself?
pete46 (Sep 30, 2009 7:16:52 PM)
I'm good thanks waiting on getting my power wheel chair
RavenP99 (Sep 30, 2009 7:17:32 PM)
just told Jim...how I'm getting used to this small hospital bed
RavenP99 (Sep 30, 2009 7:17:48 PM)
had a queen down to a twin,,,yuk
pete46 (Sep 30, 2009 7:18:37 PM)
i've been in a twin hospital bed for about a year now. I know the feeling
Jim_VA (Sep 30, 2009 7:19:15 PM)
great down to 28
RavenP99 (Sep 30, 2009 7:19:46 PM)
I have air cond. and fan on here
pete46 (Sep 30, 2009 7:20:08 PM)
28 degrees ? Celsius?
pete46 (Sep 30, 2009 7:20:30 PM)
your from fla Raven?
RavenP99 (Sep 30, 2009 7:20:35 PM)
yes
pete46 (Sep 30, 2009 7:20:57 PM)
which hockey team is your favorite?
Jim_VA (Sep 30, 2009 7:21:03 PM)
*
RavenP99 (Sep 30, 2009 7:21:36 PM)
I like the Dallas Stars
RavenP99 (Sep 30, 2009 7:21:45 PM)
the Blackhawks
pete46 (Sep 30, 2009 7:21:52 PM)
not a fla team?
RavenP99 (Sep 30, 2009 7:21:52 PM)
Flyers
pete46 (Sep 30, 2009 7:22:00 PM)
how about the bruins?
RavenP99 (Sep 30, 2009 7:22:26 PM)
ya...guess I pretty much like all of them..
RavenP99 (Sep 30, 2009 7:22:36 PM)
starts tomorrow night!!!
RavenP99 (Sep 30, 2009 7:22:38 PM)
yea
pete46 (Sep 30, 2009 7:22:47 PM)
just a hockey nut :)
RavenP99 (Sep 30, 2009 7:23:00 PM)
break out the popcorn!!
pete46 (Sep 30, 2009 7:23:44 PM)
i really dont start watching hockey or basketball until red sox are eliminated
Jim_VA (Sep 30, 2009 7:24:02 PM)
(This user has left DigiChat)
Jim_VA (Sep 30, 2009 7:25:35 PM)
(This user has entered Living with ALS)
pete46 (Sep 30, 2009 7:26:34 PM)
'
RavenP99 (Sep 30, 2009 7:26:41 PM)
welcome back Jim
pete46 (Sep 30, 2009 7:26:59 PM)
coonnection problems jim>
pete46 (Sep 30, 2009 7:29:28 PM)
I got the ok from my primary carrier that they will pay for my w/c. that will save me about $4400
pete46 (Sep 30, 2009 7:29:38 PM)
Medicare only pays 80%
pete46 (Sep 30, 2009 7:29:57 PM)
So hopefully it wont cost me anything
RavenP99 (Sep 30, 2009 7:30:28 PM)
I have tricare prime...medicare...and what MDA pays
pete46 (Sep 30, 2009 7:31:25 PM)
i still work a little so I still have ins thru work. They will pay 100%
pete46 (Sep 30, 2009 7:32:14 PM)
thats why it will save me 4400
RavenP99 (Sep 30, 2009 7:32:21 PM)
cool
Jim_VA (Sep 30, 2009 7:32:41 PM)
ty
pete46 (Sep 30, 2009 7:34:40 PM)
raven do you know if the bruins are playing tomorrow?
Jim_VA (Sep 30, 2009 7:36:14 PM)
no bro just got back from the Nats game
RavenP99 (Sep 30, 2009 7:36:29 PM)
vs Was
7:00 pm EDT
TV: VS.
RavenP99 (Sep 30, 2009 7:36:39 PM)
yup
pete46 (Sep 30, 2009 7:37:10 PM)
maybe i'll watch
RavenP99 (Sep 30, 2009 7:37:28 PM)
know I will
pete46 (Sep 30, 2009 7:38:20 PM)
the nats are going to be better next year if they get some pitching
Jim_VA (Sep 30, 2009 7:38:46 PM)
had 2 Nats blankets
Jim_VA (Sep 30, 2009 7:39:01 PM)
yes
pete46 (Sep 30, 2009 7:39:26 PM)
how cold is it down there its 46 outside here
RavenP99 (Sep 30, 2009 7:39:44 PM)
75 here
pete46 (Sep 30, 2009 7:40:09 PM)
ok raven time to switch :)
RavenP99 (Sep 30, 2009 7:40:15 PM)
would not call that cold though
Jim_VA (Sep 30, 2009 7:40:42 PM)
40's here
RavenP99 (Sep 30, 2009 7:40:50 PM)
was 53 this morning.....:_)
RavenP99 (Sep 30, 2009 7:40:59 PM)
:-)
pete46 (Sep 30, 2009 7:41:04 PM)
Time to go to Fla jim?
pete46 (Sep 30, 2009 7:41:12 PM)
lol raven
RavenP99 (Sep 30, 2009 7:41:38 PM)
I have lived in Maine...so I do know cold
RavenP99 (Sep 30, 2009 7:41:50 PM)
Germany was cold also...
RavenP99 (Sep 30, 2009 7:41:58 PM)
NC kinda both
RavenP99 (Sep 30, 2009 7:42:08 PM)
fla...hot
pete46 (Sep 30, 2009 7:42:08 PM)
you been around
Jim_VA (Sep 30, 2009 7:42:32 PM)
17 october
pete46 (Sep 30, 2009 7:42:54 PM)
thats when you go to fla? when do you come back?
RavenP99 (Sep 30, 2009 7:43:27 PM)
was an army wife
Jim_VA (Sep 30, 2009 7:43:27 PM)
may
pete46 (Sep 30, 2009 7:43:52 PM)
nice jim
pete46 (Sep 30, 2009 7:44:01 PM)
get away from the cold
beth (Sep 30, 2009 7:44:04 PM)
(This user has entered Living with ALS)
RavenP99 (Sep 30, 2009 7:44:06 PM)
snowbird.....
pete46 (Sep 30, 2009 7:44:14 PM)
lol
beth (Sep 30, 2009 7:44:32 PM)
(This user has moved to Myotonic Chat Group)
Jim_VA (Sep 30, 2009 7:45:08 PM)
lol
RavenP99 (Sep 30, 2009 7:45:22 PM)
tell me again,,,where in Fla are you coming to?
Jim_VA (Sep 30, 2009 7:46:32 PM)
daytona
RavenP99 (Sep 30, 2009 7:46:42 PM)
thats close
Jim_VA (Sep 30, 2009 7:48:22 PM)
where are you
RavenP99 (Sep 30, 2009 7:48:51 PM)
jacksonville
Jim_VA (Sep 30, 2009 7:50:31 PM)
about 90?
RavenP99 (Sep 30, 2009 7:51:31 PM)
90 what?
RavenP99 (Sep 30, 2009 7:51:43 PM)
degrees>
pete46 (Sep 30, 2009 7:52:46 PM)
(This user has left DigiChat)
Jim_VA (Sep 30, 2009 7:53:39 PM)
miles
RavenP99 (Sep 30, 2009 7:53:53 PM)
oh,..ya
RavenP99 (Sep 30, 2009 7:54:19 PM)
do you go there every year?
Jim_VA (Sep 30, 2009 7:55:49 PM)
you were a military wife
RavenP99 (Sep 30, 2009 7:55:54 PM)
yes
Jim_VA (Sep 30, 2009 7:57:59 PM)
yes have a condo there
RavenP99 (Sep 30, 2009 7:58:15 PM)
ever go to the turkey run?
RavenP99 (Sep 30, 2009 7:58:32 PM)
went one yearwas great!
Jim_VA (Sep 30, 2009 7:58:53 PM)
no
momma (Sep 30, 2009 7:59:04 PM)
(This user has entered Living with ALS)
momma (Sep 30, 2009 7:59:42 PM)
just dropping in to say hello how is everyone today
RavenP99 (Sep 30, 2009 7:59:45 PM)
Hi momma
momma (Sep 30, 2009 7:59:49 PM)
hi
RavenP99 (Sep 30, 2009 7:59:59 PM)
good how about yourself?
Jim_VA (Sep 30, 2009 8:00:17 PM)
hi mom
momma (Sep 30, 2009 8:00:21 PM)
good just got my flushot today
momma (Sep 30, 2009 8:00:24 PM)
hi jim
Jim_VA (Sep 30, 2009 8:02:53 PM)
I guess that i will get one \
momma (Sep 30, 2009 8:03:41 PM)
my son get his tommorow hopefull get the other h1n1 the next week
Jim_VA (Sep 30, 2009 8:04:49 PM)
i think i had it in the 50's
paper (Sep 30, 2009 8:04:50 PM)
(This user has entered Living with ALS)
paper (Sep 30, 2009 8:05:25 PM)
hi guys
momma (Sep 30, 2009 8:05:28 PM)
better get back to other chat goodnight
RavenP99 (Sep 30, 2009 8:05:29 PM)
hi
momma (Sep 30, 2009 8:05:36 PM)
(This user has moved to Parents of Young Adults with DMD)
paper (Sep 30, 2009 8:06:21 PM)
hi raven i dont think we have ever meet
RavenP99 (Sep 30, 2009 8:06:35 PM)
ya//kinda new on here
paper (Sep 30, 2009 8:06:45 PM)
well welcome
paper (Sep 30, 2009 8:06:50 PM)
hi jim
RavenP99 (Sep 30, 2009 8:06:50 PM)
thanks
Jim_VA (Sep 30, 2009 8:06:54 PM)
hi ;paper
paper (Sep 30, 2009 8:07:17 PM)
do you have als raven or do you have another type of md
RavenP99 (Sep 30, 2009 8:07:24 PM)
yes
RavenP99 (Sep 30, 2009 8:07:30 PM)
als
paper (Sep 30, 2009 8:07:38 PM)
i have central core md
RavenP99 (Sep 30, 2009 8:08:17 PM)
my father also had als,..died 34 years ago
paper (Sep 30, 2009 8:08:45 PM)
do they now think als runs in familys
RavenP99 (Sep 30, 2009 8:08:55 PM)
about 5%
paper (Sep 30, 2009 8:09:03 PM)
wow i didnt know that
paper (Sep 30, 2009 8:09:23 PM)
so where are you from
paper (Sep 30, 2009 8:09:29 PM)
i am in indiana
RavenP99 (Sep 30, 2009 8:09:35 PM)
I;m in Florida
paper (Sep 30, 2009 8:09:52 PM)
i have some friends that live in fl
RavenP99 (Sep 30, 2009 8:10:18 PM)
cool
paper (Sep 30, 2009 8:10:32 PM)
they are in cocobeach area
RavenP99 (Sep 30, 2009 8:10:46 PM)
I'm in jacksonville
paper (Sep 30, 2009 8:10:56 PM)
nice
paper (Sep 30, 2009 8:11:10 PM)
ill brb got to go get a drink
RavenP99 (Sep 30, 2009 8:11:14 PM)
k
Jim_VA (Sep 30, 2009 8:12:33 PM)
we are getting great research this year
RavenP99 (Sep 30, 2009 8:13:20 PM)
ya..the Mayo clinic here wants me to do some of the trials..
RavenP99 (Sep 30, 2009 8:14:45 PM)
what upsets me the most..that no insurance pays for bathroom stuff
RavenP99 (Sep 30, 2009 8:14:59 PM)
say is a luxary
RavenP99 (Sep 30, 2009 8:15:02 PM)
ya right
Jim_VA (Sep 30, 2009 8:16:09 PM)
did your hubby leave because of als
RavenP99 (Sep 30, 2009 8:16:12 PM)
no
RavenP99 (Sep 30, 2009 8:16:31 PM)
left about 6 years ago
paper (Sep 30, 2009 8:16:57 PM)
(This user has moved to Myotonic Chat Group)
pete46 (Sep 30, 2009 8:16:59 PM)
(This user has entered Living with ALS)
RavenP99 (Sep 30, 2009 8:17:15 PM)
welcome back pete
pete46 (Sep 30, 2009 8:17:24 PM)
I'm back bad connection
RavenP99 (Sep 30, 2009 8:17:30 PM)
bummer
Jim_VA (Sep 30, 2009 8:17:39 PM)
my son is navy
RavenP99 (Sep 30, 2009 8:18:06 PM)
I have 2 sons in the army
Jim_VA (Sep 30, 2009 8:20:06 PM)
in the war
RavenP99 (Sep 30, 2009 8:20:10 PM)
no
RavenP99 (Sep 30, 2009 8:20:23 PM)
germany and KY
Jim_VA (Sep 30, 2009 8:21:49 PM)
glad to hear that
RavenP99 (Sep 30, 2009 8:23:11 PM)
where is your sone?
pete46 (Sep 30, 2009 8:30:55 PM)
brb
Jim_VA (Sep 30, 2009 8:32:40 PM)
he served 8 years active he is reserves now at Andrews AFB
RavenP99 (Sep 30, 2009 8:33:00 PM)
cool
Jim_VA (Sep 30, 2009 8:36:24 PM)
they have a small naval air unit there
pete46 (Sep 30, 2009 8:38:20 PM)
gotta go shower talk to you two later
pete46 (Sep 30, 2009 8:38:23 PM)
(This user has left DigiChat)
RavenP99 (Sep 30, 2009 8:38:34 PM)
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Jim_VA (Sep 30, 2009 9:27:08 PM)
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