Living with ALS

db273 (Sep 3, 2008 6:06:47 PM)
welcome

Jim_VA (Sep 3, 2008 6:22:47 PM)
(This user has entered Living with ALS)

db273 (Sep 3, 2008 6:22:54 PM)
hi jim

Jim_VA (Sep 3, 2008 6:23:53 PM)
hi dick

db273 (Sep 3, 2008 6:24:03 PM)
how are you tonight

Jim_VA (Sep 3, 2008 6:24:53 PM)
tired and you

db273 (Sep 3, 2008 6:25:20 PM)
me too did a bats game mon and had the great grandaughter here today

Jim_VA (Sep 3, 2008 6:25:54 PM)
nice

db273 (Sep 3, 2008 6:26:36 PM)
so what made you tired chasing the wife

Jim_VA (Sep 3, 2008 6:27:20 PM)
Julie was in]

db273 (Sep 3, 2008 6:27:31 PM)
great how is she doing

Jim_VA (Sep 3, 2008 6:27:53 PM)
lol not that

db273 (Sep 3, 2008 6:28:21 PM)
lol

Jim_VA (Sep 3, 2008 6:28:30 PM)
she is ok

db273 (Sep 3, 2008 6:28:41 PM)
good how is her dog doing

Jim_VA (Sep 3, 2008 6:29:12 PM)
fine

db273 (Sep 3, 2008 6:29:27 PM)
nice

Jim_VA (Sep 3, 2008 6:29:43 PM)
she is lonely]

db273 (Sep 3, 2008 6:29:44 PM)
puppies are fun

Jim_VA (Sep 3, 2008 6:30:04 PM)
yes

db273 (Sep 3, 2008 6:30:21 PM)
over 20 years of being married leaves an impression

Jim_VA (Sep 3, 2008 6:31:03 PM)
4 sure'

db273 (Sep 3, 2008 6:31:19 PM)
pat might even miss me

Jim_VA (Sep 3, 2008 6:32:36 PM)
I tried to ger her to play cards lol

db273 (Sep 3, 2008 6:32:54 PM)
better to do free cell

db273 (Sep 3, 2008 6:34:29 PM)
i figured she would be knee deep in her garden

Jim_VA (Sep 3, 2008 6:35:47 PM)
she said that she was thinking about disconnecting the internet

db273 (Sep 3, 2008 6:36:34 PM)
she might be right there unless her kids use it some and she can email them but maybe the internet leaves a bad taste

Jim_VA (Sep 3, 2008 6:36:35 PM)
yes she is

Jim_VA (Sep 3, 2008 6:37:05 PM)
could be

db273 (Sep 3, 2008 6:37:26 PM)
some things i would think make you think too much

Jim_VA (Sep 3, 2008 6:38:19 PM)
I think it would be a mistake

db273 (Sep 3, 2008 6:39:21 PM)
we both love it too much and it is such a big part of our life she is not tied down like we are makes a big difference cause sometimes i get discouraged and want to quit it too gets too depressing

Jim_VA (Sep 3, 2008 6:40:02 PM)
have you heard from ginger

db273 (Sep 3, 2008 6:40:30 PM)
not in a while she is in africa and not heard a word since marcus got married in portland

Jim_VA (Sep 3, 2008 6:43:13 PM)
yes but the internet is a connection to people

Jim_VA (Sep 3, 2008 6:43:27 PM)
ah

db273 (Sep 3, 2008 6:43:33 PM)
sure is my bill collectors keep reminding me

Jim_VA (Sep 3, 2008 6:43:47 PM)
.lol

db273 (Sep 3, 2008 6:44:35 PM)
i felt good yesterday my son got his ss projection and i was way ahead of him

Jim_VA (Sep 3, 2008 6:45:12 PM)
have you been in sigma

db273 (Sep 3, 2008 6:45:27 PM)
yesterday for a while

Jim_VA (Sep 3, 2008 6:45:38 PM)
great

db273 (Sep 3, 2008 6:46:17 PM)
i have to really have some time to myself as yesterday no card game cause of holiday

Jim_VA (Sep 3, 2008 6:47:33 PM)
I haven't been there for a couple weeks

db273 (Sep 3, 2008 6:47:56 PM)
i go in spurts

Jim_VA (Sep 3, 2008 6:49:26 PM)
some of them put me on their facebook

Jim_VA (Sep 3, 2008 6:50:31 PM)
Maria's mom too

db273 (Sep 3, 2008 6:50:40 PM)
i am on face book but do not go there much just check to see if alex or drew or sarah or katie say anything course they are my grandkids

Jim_VA (Sep 3, 2008 6:51:20 PM)
I don't either

db273 (Sep 3, 2008 6:51:55 PM)
it is nice to talk with someone outside the loop sometimes makes your brain work

Jim_VA (Sep 3, 2008 6:53:32 PM)
I am going to write to Kennedy tomorrow

db273 (Sep 3, 2008 6:53:42 PM)
ted?

Jim_VA (Sep 3, 2008 6:54:04 PM)
yes

db273 (Sep 3, 2008 6:54:35 PM)
neat well jim i need to go root the cubs to a win they have lost 4 in a row

db273 (Sep 3, 2008 6:56:09 PM)
(This user has left DigiChat)

Jim_VA (Sep 3, 2008 6:56:24 PM)
'

Jim_VA (Sep 3, 2008 6:57:04 PM)
(This user has left DigiChat)

Jim_VA (Sep 3, 2008 6:57:22 PM)
(This user has entered Living with ALS)

Jim_VA (Sep 3, 2008 6:57:48 PM)
(This user has left DigiChat)

matts-mom2002 (Sep 3, 2008 7:04:05 PM)
(This user has entered Living with ALS)

samsrals (Sep 3, 2008 7:07:07 PM)
(This user has entered Living with ALS)

samsrals (Sep 3, 2008 7:07:19 PM)
hi all

matts-mom2002 (Sep 3, 2008 7:08:07 PM)
(This user has left DigiChat)

Jim_VA (Sep 3, 2008 7:09:56 PM)
(This user has entered Living with ALS)

samsrals (Sep 3, 2008 7:10:05 PM)
hey you

Jim_VA (Sep 3, 2008 7:10:49 PM)
hi sam

samsrals (Sep 3, 2008 7:11:23 PM)
i wasfeelin kind lonely in this room all by myself

samsrals (Sep 3, 2008 7:11:29 PM)
ha ha

Jim_VA (Sep 3, 2008 7:12:35 PM)
sorry I had to take a food break

samsrals (Sep 3, 2008 7:13:08 PM)
noone else was here either

Jim_VA (Sep 3, 2008 7:13:56 PM)
lol how well I know that

samsrals (Sep 3, 2008 7:14:27 PM)
did you see the jerry lewis telethon?

Jim_VA (Sep 3, 2008 7:14:43 PM)
dick was in earlier

Jim_VA (Sep 3, 2008 7:15:29 PM)
some of it

samsrals (Sep 3, 2008 7:15:46 PM)
did you see augie's new toy?

Jim_VA (Sep 3, 2008 7:16:30 PM)
no I missed that

Jim_VA (Sep 3, 2008 7:17:24 PM)
he is something though

samsrals (Sep 3, 2008 7:17:29 PM)
he has a computor that talks for him by reading his thoughts

Jim_VA (Sep 3, 2008 7:19:01 PM)
wow he is really on the research

samsrals (Sep 3, 2008 7:19:02 PM)
(This user has left DigiChat)

samsrals (Sep 3, 2008 7:20:04 PM)
(This user has entered Living with ALS)

samsrals (Sep 3, 2008 7:20:33 PM)
sorry technical glitch

Jim_VA (Sep 3, 2008 7:20:45 PM)
I don't know if I could use that

Jim_VA (Sep 3, 2008 7:20:55 PM)
wb

samsrals (Sep 3, 2008 7:21:47 PM)
why....afraid to get into trouble too much?

Jim_VA (Sep 3, 2008 7:23:05 PM)
my thoughts might be too much for people

Jim_VA (Sep 3, 2008 7:24:22 PM)
I have a harsh tendancy

samsrals (Sep 3, 2008 7:25:06 PM)
same here

samsrals (Sep 3, 2008 7:25:07 PM)
lol

Jim_VA (Sep 3, 2008 7:25:46 PM)
lol

samsrals (Sep 3, 2008 7:26:54 PM)
i got way too many thoughts.....

samsrals (Sep 3, 2008 7:27:05 PM)
most of them dirty

samsrals (Sep 3, 2008 7:28:01 PM)
90% of them

samsrals (Sep 3, 2008 7:28:06 PM)
lol lol

Jim_VA (Sep 3, 2008 7:28:29 PM)
If I see something wrong I cannot keep quiet

Jim_VA (Sep 3, 2008 7:28:37 PM)
lol

Jim_VA (Sep 3, 2008 7:29:42 PM)
I must be too old lol

samsrals (Sep 3, 2008 7:30:59 PM)
never!!!!!!!!!!!!!!!!

Jim_VA (Sep 3, 2008 7:32:28 PM)
How are you doing

Jim_VA (Sep 3, 2008 7:33:41 PM)
I use to say that lol

samsrals (Sep 3, 2008 7:34:15 PM)
ok...they are doing lots for me now...

Jim_VA (Sep 3, 2008 7:35:28 PM)
great

samsrals (Sep 3, 2008 7:36:32 PM)
soon i will be getting; a oversised hospital bed, a new shower chair, new things for my chair..a new footrest, a tray, and head controls, also i now have an aide that comes every day and pt/ot and a nurse who come once a week.

samsrals (Sep 3, 2008 7:37:03 PM)
we are also trying to get funding to get the bathtub redone to a roll in tub.

Jim_VA (Sep 3, 2008 7:37:38 PM)
have you heard anything more about the ASC's

Jim_VA (Sep 3, 2008 7:38:08 PM)
great

samsrals (Sep 3, 2008 7:38:11 PM)
not much...just what we already know

Brad (Sep 3, 2008 7:38:30 PM)
(This user has entered Living with ALS)

Jim_VA (Sep 3, 2008 7:38:53 PM)
hi brad

Brad (Sep 3, 2008 7:39:14 PM)
Hi, Jim. I hope everyone is doing okay.

samsrals (Sep 3, 2008 7:39:30 PM)
hi brad

Brad (Sep 3, 2008 7:39:45 PM)
Hi, Samsrals

momma (Sep 3, 2008 7:40:15 PM)
(This user has entered Living with ALS)

Jim_VA (Sep 3, 2008 7:40:22 PM)
yes do you have ALS

Brad (Sep 3, 2008 7:40:28 PM)
Yo, Momma

momma (Sep 3, 2008 7:40:37 PM)
yo back lol

Brad (Sep 3, 2008 7:40:39 PM)
Yes, I have been recently diagnosed

Jim_VA (Sep 3, 2008 7:40:59 PM)
Hi mom

samsrals (Sep 3, 2008 7:41:07 PM)
hi momma

momma (Sep 3, 2008 7:41:18 PM)
sorry to but in acyually was seeing if i could on i couldnt get on dmd chat last night

momma (Sep 3, 2008 7:41:30 PM)
how is every one

samsrals (Sep 3, 2008 7:41:43 PM)
day by day

momma (Sep 3, 2008 7:41:44 PM)
i a dmd mom

Brad (Sep 3, 2008 7:41:58 PM)
wellll, pretty good.......I suppose

samsrals (Sep 3, 2008 7:42:27 PM)
what r your symptoms brad

momma (Sep 3, 2008 7:42:34 PM)
that a good thing day by day ? that how we approach life to ya never know what todau will bring

Jim_VA (Sep 3, 2008 7:43:07 PM)
My name is Jim and I have Amyotrophic Lateral Sclerosis. I am sixty six years old. I have been on a ventilator for over seven years, bedridden for five years, and I plan to live until I see a cure.

Brad (Sep 3, 2008 7:43:24 PM)
lower limb weakness....get around poorly......a short time ago I was very active with our bicycle club and an avid golfer, so trying to accept this change

Brad (Sep 3, 2008 7:43:58 PM)
ahhhhhhhhhhh, great words Jim

momma (Sep 3, 2008 7:44:05 PM)
my son is 22 and on niv 24/7 but doing well

Jim_VA (Sep 3, 2008 7:44:11 PM)
sorry to hear that mom

Jim_VA (Sep 3, 2008 7:44:37 PM)
ty brad

momma (Sep 3, 2008 7:45:42 PM)
well dont be sorry we are fighters we fight dr and odds al the time dr told us life expectance was 15 -16 he s22

momma (Sep 3, 2008 7:46:18 PM)
dr wanted to trach him 2 yrs ago but he uses a sip vent no trach:)

Jim_VA (Sep 3, 2008 7:46:44 PM)
do you have any questions brad

momma (Sep 3, 2008 7:47:09 PM)
ok i ll leave you all alone tc have agood evening

Jim_VA (Sep 3, 2008 7:47:21 PM)
I know mom

Brad (Sep 3, 2008 7:47:34 PM)
probably a ton of questions, Jim. This is so hard to understand. It does me good to be here with you fighters, because that's the way I feel about this

samsrals (Sep 3, 2008 7:47:40 PM)
i am 29 years old....diagnosed march 2006 with weakness in hands....nov. 2007 completely wheelchair bound..now unable to move arms or legs at all...have 5 children and a new wife and step-daughter...that makes 6 kids

momma (Sep 3, 2008 7:48:05 PM)
(This user has moved to Parents of Young Adults with DMD)

Brad (Sep 3, 2008 7:48:27 PM)
wowwwwww.......that's a lot of kids

Jim_VA (Sep 3, 2008 7:49:02 PM)
great brad

Brad (Sep 3, 2008 7:49:03 PM)
mine children are grown......I am 58

Jim_VA (Sep 3, 2008 7:50:12 PM)
where are you brad

Brad (Sep 3, 2008 7:50:28 PM)
In Birmingham, Alabama

samsrals (Sep 3, 2008 7:50:32 PM)
yep....keeps my mind busy and keeps me fighting...if it wasn't for them and my beutiful and caring wife i think i would give up.

Jim_VA (Sep 3, 2008 7:50:56 PM)
Arlington Virginia here

samsrals (Sep 3, 2008 7:51:14 PM)
Columbus, Ohio here

Brad (Sep 3, 2008 7:51:45 PM)
wellllllllll, I have considered but refused retirement so far.......its my life and I don't leave easily.....might have to reconsider in the near future though

Brad (Sep 3, 2008 7:51:55 PM)
ahhhhhhhhhh, we are all over

Brad (Sep 3, 2008 7:53:45 PM)
anyone have hobbies:? sports?

Jim_VA (Sep 3, 2008 7:53:51 PM)
I retired before I had any symptoms

Brad (Sep 3, 2008 7:54:21 PM)
yeah, good move, Jim.....really thinking about my mobility and what I want to do outside of work

samsrals (Sep 3, 2008 7:55:32 PM)
used to wrestle, play football, and drive a big rig

Jim_VA (Sep 3, 2008 7:55:37 PM)
yes tide sucks - go vols

samsrals (Sep 3, 2008 7:55:48 PM)
also, i used to work security

Brad (Sep 3, 2008 7:55:53 PM)
wowwwwww.......hahahahaha......Jim, i am a U

Brad (Sep 3, 2008 7:56:11 PM)
I am a UCLA grad....and that's who beat the Vols this week

Jim_VA (Sep 3, 2008 7:56:38 PM)
I know

Brad (Sep 3, 2008 7:56:47 PM)
impressive, Samsrals.........I notice that others with this were often physically active previously

Mama03And05 (Sep 3, 2008 7:56:52 PM)
(This user has entered Living with ALS)

Mama03And05 (Sep 3, 2008 7:57:10 PM)
hi there

Brad (Sep 3, 2008 7:57:14 PM)
But, Jim........Southern Cal will kill UCLA this year

Brad (Sep 3, 2008 7:57:26 PM)
Yo, Mama

Mama03And05 (Sep 3, 2008 7:57:39 PM)
oh dear hehe

Jim_VA (Sep 3, 2008 7:57:45 PM)
they looked pathetic

Brad (Sep 3, 2008 7:58:00 PM)
yep, they sure did..........I am not much of a

Jim_VA (Sep 3, 2008 7:58:14 PM)
hi mam

Mama03And05 (Sep 3, 2008 7:58:27 PM)
I have SMA I/II... do you all have ALS?

Brad (Sep 3, 2008 7:58:33 PM)
Tide fan.....my kids went to Auburn, I am a West Coaster and I am married to an LSU grad

Brad (Sep 3, 2008 7:58:57 PM)
yep

samsrals (Sep 3, 2008 7:59:04 PM)
yes

Mama03And05 (Sep 3, 2008 7:59:22 PM)
I'm 29

Jim_VA (Sep 3, 2008 7:59:30 PM)
yes mam

Brad (Sep 3, 2008 7:59:42 PM)
wowwwwwww.....you are young

Jim_VA (Sep 3, 2008 7:59:42 PM)
66

Brad (Sep 3, 2008 7:59:48 PM)
58

samsrals (Sep 3, 2008 7:59:53 PM)
29 here

Mama03And05 (Sep 3, 2008 8:00:31 PM)
when did you all develop symptoms? I was d'xd at 2.

Brad (Sep 3, 2008 8:00:53 PM)
I have just been recently diagnosed

samsrals (Sep 3, 2008 8:01:05 PM)
march 2006

Mama03And05 (Sep 3, 2008 8:01:08 PM)
ALS is similar to SMA, I think.

Mama03And05 (Sep 3, 2008 8:01:14 PM)
wow...

Jim_VA (Sep 3, 2008 8:01:31 PM)
2001

samsrals (Sep 3, 2008 8:01:56 PM)
not to sound dumb but... what is SMA?

Mama03And05 (Sep 3, 2008 8:01:57 PM)
only SMA usually appears in infancy/toddlerhood

Mama03And05 (Sep 3, 2008 8:02:21 PM)
spinal muscular atrophy

samsrals (Sep 3, 2008 8:03:37 PM)
ohhh

samsrals (Sep 3, 2008 8:03:47 PM)
ok i feel dumb now

Mama03And05 (Sep 3, 2008 8:04:12 PM)
why? never a dumb question

Mama03And05 (Sep 3, 2008 8:04:33 PM)
do any of you use a wheelchair?

Jim_VA (Sep 3, 2008 8:04:42 PM)
is that a MND

Jim_VA (Sep 3, 2008 8:05:01 PM)
yes

Brad (Sep 3, 2008 8:05:26 PM)
I guess as a fairly recent ALS guy, I am somewhat in denial.......I use a cane, as others at my office don't want to pick me up when I fall

Mama03And05 (Sep 3, 2008 8:05:35 PM)
yes, - it's a neuromuscular disease. I've never walked.

Brad (Sep 3, 2008 8:06:09 PM)
ahhhhhhhhhhh.......very interesting, Mama

Mama03And05 (Sep 3, 2008 8:06:10 PM)
that's awful, Brad... nice coworkers

Jim_VA (Sep 3, 2008 8:06:11 PM)
sorry

samsrals (Sep 3, 2008 8:07:04 PM)
i have a powerchair

Mama03And05 (Sep 3, 2008 8:07:11 PM)
don't be sorry. my life is pretty good, have two great and wild kids, a somewhat decent husband ;)

Brad (Sep 3, 2008 8:07:19 PM)
wellllllllllllll........my coworkers are wonderful people.......I've struggled to try and explain to them what is going on.......on one hand I don't want them in the dark, but on the other don't want to depress them.

Mama03And05 (Sep 3, 2008 8:07:29 PM)
as do I, sam

Jim_VA (Sep 3, 2008 8:07:51 PM)
are you fragile brad

Brad (Sep 3, 2008 8:08:28 PM)
I don't think so, Jim....I have done sports all my life....I tend to bounce back up......

Jim_VA (Sep 3, 2008 8:08:51 PM)
lol

Brad (Sep 3, 2008 8:09:31 PM)
I like the somewhat decent husband comment....I wonder what my wife would say about me

Mama03And05 (Sep 3, 2008 8:09:42 PM)
heheh

Mama03And05 (Sep 3, 2008 8:10:24 PM)
(This user has moved to Myotonic Chat Group)

Brad (Sep 3, 2008 8:10:25 PM)
so, Jim.........you have persevered well through this.....impressed at your longevity

Jim_VA (Sep 3, 2008 8:10:37 PM)
brad this is my website www.alsandus.org

Brad (Sep 3, 2008 8:11:02 PM)
very cool, Jim....glad you do this

samsrals (Sep 3, 2008 8:11:32 PM)
his site has been very helpful for me

Jim_VA (Sep 3, 2008 8:12:15 PM)
ty my wifes fault

Brad (Sep 3, 2008 8:12:19 PM)
its very nice to talk with all of you.......i haven't been too impressed with trying to get info from doctors so far

Brad (Sep 3, 2008 8:12:44 PM)
hahahaha, wives keep us straight, Jim

Jim_VA (Sep 3, 2008 8:13:02 PM)
lol

samsrals (Sep 3, 2008 8:13:11 PM)
my kids watch the pics and see what i could be like and are thankful for what they have..it also shows them something to look forward to

samsrals (Sep 3, 2008 8:13:44 PM)
watch it guys... my wife does all my typing for me so she is on here too....

samsrals (Sep 3, 2008 8:13:57 PM)
hi fellas..from Jessi

Brad (Sep 3, 2008 8:14:26 PM)
Hi, Jess............I would let my wife type, but then you might hear the truth

Jim_VA (Sep 3, 2008 8:14:32 PM)
get a good pulmonologist brad

Jim_VA (Sep 3, 2008 8:15:06 PM)
lol sam

Brad (Sep 3, 2008 8:15:41 PM)
thanks, I've been told that

samsrals (Sep 3, 2008 8:15:46 PM)
ha ha ha...i try to type only what sam tells me to

Jim_VA (Sep 3, 2008 8:15:57 PM)
Hi Jessi

samsrals (Sep 3, 2008 8:16:32 PM)
hi Jim sweetie....how r u feeling today?

Jim_VA (Sep 3, 2008 8:17:41 PM)
fine ty and you?

Jim_VA (Sep 3, 2008 8:19:05 PM)
That is about all that I see now

Brad (Sep 3, 2008 8:20:49 PM)
you folks are very impressive.....glad I logged on

Jim_VA (Sep 3, 2008 8:21:04 PM)
I did go to a neuro this year

Jim_VA (Sep 3, 2008 8:22:31 PM)
first time in 5 years

Brad (Sep 3, 2008 8:22:57 PM)
I've been tested in two neuro programs.....just find the docs a bit cold.....rather chat with you

Jim_VA (Sep 3, 2008 8:23:58 PM)
most are

Jim_VA (Sep 3, 2008 8:25:09 PM)
I call mine doctor K

samsrals (Sep 3, 2008 8:25:32 PM)
as in kavorkiean? haha

Brad (Sep 3, 2008 8:25:35 PM)
and do I dare ask about the K

Brad (Sep 3, 2008 8:25:41 PM)
hahahahahaha

Brad (Sep 3, 2008 8:25:58 PM)
yeah, they are reporters, not especially helpers

Jim_VA (Sep 3, 2008 8:27:04 PM)
you guessed it sam

samsrals (Sep 3, 2008 8:27:30 PM)
the pissed off at the doctors faze will pass brad......soon enough you will just tolerate...not hate

Brad (Sep 3, 2008 8:28:19 PM)
you are right....actually I am very happy with life, with my children and wife......got a great family

Jim_VA (Sep 3, 2008 8:28:32 PM)
nurses are usually good

Brad (Sep 3, 2008 8:29:27 PM)
yep........got one who calls me now....don't tell my wife

Brad (Sep 3, 2008 8:30:28 PM)
(kidding)

samsrals (Sep 3, 2008 8:31:35 PM)
well, i have a nurse too...but she is old and bitchy...

Jim_VA (Sep 3, 2008 8:31:38 PM)
I have a doctors wife who writes to me

Jim_VA (Sep 3, 2008 8:31:53 PM)
lol

samsrals (Sep 3, 2008 8:31:55 PM)
oh i'm sorry....i was talkin about my wife...haha

Brad (Sep 3, 2008 8:32:19 PM)
Jess didn't type that

samsrals (Sep 3, 2008 8:33:10 PM)
why not i....i am bitchy....i perfected it...

samsrals (Sep 3, 2008 8:33:28 PM)
he will get hit for the old part...i am 27

samsrals (Sep 3, 2008 8:33:46 PM)
hes 29

Jim_VA (Sep 3, 2008 8:33:56 PM)
her daughter died from ALS

samsrals (Sep 3, 2008 8:33:56 PM)
hes the old one

Brad (Sep 3, 2008 8:34:06 PM)
my wife is into karate.....I need to watch what I say, before I get clobbered

Jim_VA (Sep 3, 2008 8:35:46 PM)
lol my wife is into food

samsrals (Sep 3, 2008 8:35:55 PM)
sam says.."yeah clubber your wood" haha

samsrals (Sep 3, 2008 8:36:36 PM)
sam says"what jim...cucumbers?'.."haha"

Jim_VA (Sep 3, 2008 8:37:17 PM)
I wish lol

Brad (Sep 3, 2008 8:37:46 PM)
wellllllll, I can be into food........is she a good cook?

samsrals (Sep 3, 2008 8:38:27 PM)
look at the website he gave you....then decide

Brad (Sep 3, 2008 8:39:31 PM)
ahhhhhhhhhh, I will

Jim_VA (Sep 3, 2008 8:39:35 PM)
I use to cook

Brad (Sep 3, 2008 8:40:16 PM)
sounds good, Jim....I think I can cook, but it just doesn't come out right

Jim_VA (Sep 3, 2008 8:40:35 PM)
lol

Jim_VA (Sep 3, 2008 8:41:32 PM)
it was fun

samsrals (Sep 3, 2008 8:42:07 PM)
sam doesnt complain about my "cooking"

Brad (Sep 3, 2008 8:42:20 PM)
smart guy, Sam

Jim_VA (Sep 3, 2008 8:42:25 PM)
and the wine yummy

Jim_VA (Sep 3, 2008 8:42:35 PM)
lol

Brad (Sep 3, 2008 8:44:11 PM)
you think like I do, Jim

samsrals (Sep 3, 2008 8:44:22 PM)
go to the resteraunt YMCA

Jim_VA (Sep 3, 2008 8:45:07 PM)
I drank whatever did not go in the food

Brad (Sep 3, 2008 8:45:33 PM)
yeah, don't want to waste it in the food

samsrals (Sep 3, 2008 8:45:40 PM)
what you hungry jim?

Jim_VA (Sep 3, 2008 8:46:05 PM)
.lol

samsrals (Sep 3, 2008 8:46:37 PM)
what about pie...do you like pie?

Brad (Sep 3, 2008 8:46:56 PM)
ohhhhhhhhhhhhh, we love pie here

samsrals (Sep 3, 2008 8:47:44 PM)
what kind of pie?

Jim_VA (Sep 3, 2008 8:48:18 PM)
it goes nicely in the tube

Brad (Sep 3, 2008 8:48:28 PM)
got a place near my office that makes spectacular cream pies.......sort of torn between chocolate and coconut\

samsrals (Sep 3, 2008 8:49:10 PM)
so do yo like twinkies?

Brad (Sep 3, 2008 8:49:47 PM)
I am a commonsewer, Sam.....I can do Twinkies

Jim_VA (Sep 3, 2008 8:51:32 PM)
I like blueberry

samsrals (Sep 3, 2008 8:52:15 PM)
my wife does some amazing things with chocolate......if you know what i mean.....we just have to wait for the kids to go to bed or school...heh heh

Jim_VA (Sep 3, 2008 8:52:48 PM)
lol

Brad (Sep 3, 2008 8:53:12 PM)
hahahahaha........sounds sweet, lSam

Jim_VA (Sep 3, 2008 8:54:02 PM)
fun huh

samsrals (Sep 3, 2008 8:54:08 PM)
that is one thing that i am determined this disease will not take away....my limbs may not work but my mouth and mini sam does.

Jim_VA (Sep 3, 2008 8:54:57 PM)
lol

Brad (Sep 3, 2008 8:56:00 PM)
have mini good times

Jim_VA (Sep 3, 2008 8:56:32 PM)
I cannot do much of anything

samsrals (Sep 3, 2008 8:56:35 PM)
mini sam aint so mini...if you know what i mean

Jim_VA (Sep 3, 2008 8:56:55 PM)
lol brad

samsrals (Sep 3, 2008 8:57:04 PM)
jessi says...poor baby

Brad (Sep 3, 2008 8:57:51 PM)
don't sound like you are doing too poorly

Jim_VA (Sep 3, 2008 8:59:28 PM)
brad I have an old friend who teaches nursing at UCSB

samsrals (Sep 3, 2008 8:59:28 PM)
im sorry jim...im sure you miss it

samsrals (Sep 3, 2008 9:00:26 PM)
too bad we dont live close...we could all hang out...you guys seem fun

Brad (Sep 3, 2008 9:00:46 PM)
ahhhhhhhhhh.......I have a couple of doctor friends coming here in a couple of weeks from California....neither of them are buying my explanation of things

Jim_VA (Sep 3, 2008 9:01:12 PM)
lol the bird flew the coop

Brad (Sep 3, 2008 9:01:16 PM)
yeah, you too, Sam.....

samsrals (Sep 3, 2008 9:02:12 PM)
well, gotta get up at 530 am to get kids off to school....talk to you guys soon

samsrals (Sep 3, 2008 9:02:23 PM)
c-ya

Brad (Sep 3, 2008 9:02:26 PM)
thanks for talking with me

Jim_VA (Sep 3, 2008 9:02:47 PM)
take care

Brad (Sep 3, 2008 9:02:53 PM)
we get up at 4am here..........I need to go, too

samsrals (Sep 3, 2008 9:02:59 PM)
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Jim_VA (Sep 3, 2008 9:03:01 PM)
nc

Jim_VA (Sep 3, 2008 9:03:09 PM)
It was very nice chatting with you. Take care and do come back soon! bye

Brad (Sep 3, 2008 9:03:27 PM)
thank, Jim....great site...take care, please

Jim_VA (Sep 3, 2008 9:03:55 PM)
u 2 bye

Brad (Sep 3, 2008 9:04:06 PM)
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Jim_VA (Sep 3, 2008 9:04:51 PM)
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momma (Sep 3, 2008 9:31:52 PM)
(This user has entered Living with ALS)

momma (Sep 3, 2008 9:31:56 PM)
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