Living with ALS 2

ALSVET1 (Sep 28, 2009 7:49:43 PM)
This is my first time on a chat line. I have ALS. I see no one is logged on except me, so I will wait awhile.....

Jim_VA (Sep 28, 2009 8:14:33 PM)
(This user has entered Living with ALS 2)

Jim_VA (Sep 28, 2009 8:16:00 PM)
Hi

ALSVET1 (Sep 28, 2009 8:18:26 PM)
Hi Jim! PTL! somebody is here. I am crying now. I have been crying for 3 months almost every day. I know there are a certain percentage who live more extended lives. I have to beleive I am one of them.

jeffreyl (Sep 28, 2009 8:19:14 PM)
(This user has entered Living with ALS 2)

jeffreyl (Sep 28, 2009 8:20:30 PM)
hows everyone doing?

Jim_VA (Sep 28, 2009 8:20:51 PM)
I have had it 10 years

jeffreyl (Sep 28, 2009 8:21:14 PM)
i am off to the neuro tomorrow

ALSVET1 (Sep 28, 2009 8:21:24 PM)
Hi Jeffrey! I feel better already. My ALS is from Agent Orange in Vietnam. I do not know if you are a vet or not - but you have ALS, and you understand! God bless and encourage you!

jeffreyl (Sep 28, 2009 8:21:56 PM)
my brother was a vietnam vet also.

ALSVET1 (Sep 28, 2009 8:22:54 PM)
What does it mean jeffrey - I am off to the neuro - you mean a neurologist?

jeffreyl (Sep 28, 2009 8:23:05 PM)
yes

Jim_VA (Sep 28, 2009 8:23:25 PM)
Are you looking for a diagnosis jeff

jeffreyl (Sep 28, 2009 8:23:38 PM)
yes

ALSVET1 (Sep 28, 2009 8:24:06 PM)
Get a good one, and do not give up! It is often misdiagnosed.

jeffreyl (Sep 28, 2009 8:24:56 PM)
god bless you all. i am about to join your ranks

Jim_VA (Sep 28, 2009 8:25:20 PM)
make sure that you are tested for lyme disease

jeffreyl (Sep 28, 2009 8:25:44 PM)
ok but not around any ticks

Jim_VA (Sep 28, 2009 8:27:13 PM)
that makes a difference

jeffreyl (Sep 28, 2009 8:27:19 PM)
lost about 40lbs of muscle,lost feeling in foot, brisk reflexes,muscle cramps and twitching

Jim_VA (Sep 28, 2009 8:28:28 PM)
that fits'

jeffreyl (Sep 28, 2009 8:28:46 PM)
thats what worries me

ALSVET1 (Sep 28, 2009 8:28:52 PM)
Jim_VA, I just want you to know - my compensation is being determined right now, last week and this week. It is just hard for the money - we are also a hardship case - because of our limited income - but I am trying to keep my spirits up. It'll be soon.

Jim_VA (Sep 28, 2009 8:29:42 PM)
yes do

jeffreyl (Sep 28, 2009 8:30:31 PM)
i believe there is a reason for everything. better days are coming

Jim_VA (Sep 28, 2009 8:31:34 PM)
with a diagnosis of als you are eligible for medicare

ALSVET1 (Sep 28, 2009 8:33:08 PM)
I respect all faiths - I am a Christian - but I would like to pray for you Jeffrey1. My symptoms are similar, and even more - except the weight loss is not as advanced. If you say It is OK - I will do so. If not, I will respect that.

Jim_VA (Sep 28, 2009 8:33:33 PM)
and if you cannot work you are eligible for ssdi

jeffreyl (Sep 28, 2009 8:34:00 PM)
please do

ALSVET1 (Sep 28, 2009 8:34:25 PM)
That is how I have been making it jeffrey1 - ssdi

jeffreyl (Sep 28, 2009 8:36:00 PM)
god bless you ,i will also pray for you

Jim_VA (Sep 28, 2009 8:36:37 PM)
i have been on a ventilator for over 8 years

jeffreyl (Sep 28, 2009 8:37:09 PM)
do you have bulbar?

ALSVET1 (Sep 28, 2009 8:37:24 PM)
Thank you Jeffrey1 - my wife and my brother and myself just prayed for you!

Jim_VA (Sep 28, 2009 8:37:45 PM)
I am slow typing due to my adaptive equipment

jeffreyl (Sep 28, 2009 8:38:15 PM)
Thank you alsvet1

Jim_VA (Sep 28, 2009 8:39:07 PM)
no I stopped breathing 5 17, 01

ALSVET1 (Sep 28, 2009 8:39:57 PM)
Jim_VA - I am sure lots of people have prayed for you already, in addition to yourself. I would like to pray for you - is that OK?

jeffreyl (Sep 28, 2009 8:40:11 PM)
you have been down a hard road,keep plugging away

jeffreyl (Sep 28, 2009 8:40:58 PM)
are you guys in this room often?

Jim_VA (Sep 28, 2009 8:41:13 PM)
do either of you belong to plm?

jeffreyl (Sep 28, 2009 8:41:21 PM)
no

Jim_VA (Sep 28, 2009 8:42:46 PM)
join patients like me

jeffreyl (Sep 28, 2009 8:43:31 PM)
what is the url

Jim_VA (Sep 28, 2009 8:44:30 PM)
i appreciate all of the prayers that i can get

ALSVET1 (Sep 28, 2009 8:44:33 PM)
This is my first time in the chat room, jeffery1. Jim_VA - I have heard of plm: Praise the Lord Ministries. I have a good prayer support at VCF!

ALSVET1 (Sep 28, 2009 8:45:54 PM)
Hello brit!

ALSVET1 (Sep 28, 2009 8:46:41 PM)
hello wolflady!

jeffreyl (Sep 28, 2009 8:47:15 PM)
well you guys got to go for now,god bless you i will keep you all in my prayers.

jeffreyl (Sep 28, 2009 8:47:48 PM)
(This user has left DigiChat)

Jim_VA (Sep 28, 2009 8:48:59 PM)
http://www.patientslikeme.com/login

ALSVET1 (Sep 28, 2009 8:49:16 PM)
brit I see your logo is an American Flag, and wolflady I see your logo is a football!

ALSVET1 (Sep 28, 2009 8:51:16 PM)
Jim_VA - if I use this login that you have there - will I have to create a new login?

Jim_VA (Sep 28, 2009 8:51:32 PM)
you are looking in another room

Jim_VA (Sep 28, 2009 8:52:46 PM)
you will have to join

Jim_VA (Sep 28, 2009 8:54:05 PM)
you wont regret it

Jim_VA (Sep 28, 2009 8:55:36 PM)
3400 als patients

ALSVET1 (Sep 28, 2009 8:56:37 PM)
I have just joined! I am going to signout here now and check my e-mail. Thanks Jim-VA!

ALSVET1 (Sep 28, 2009 8:56:41 PM)
(This user has left DigiChat)