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ALS: Anyone’s
  L
ife Story”
May 2008
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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

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Tiffany Macias
Tiffany Macias

Name: Tiffany Macias

Hometown, State: Lansing, MI

Age: 38

Family:
Husband: Tony Macias
Children: Mackenzie, 10; Silas, 5; and Avery, 2

Hobbies/Interests:
Family, photography and scrapbooking

Date of ALS diagnosis:
June 28, 2007

Tell us about your life before ALS:
Very outgoing mother involved in the children’s school as a tutor and very outspoken and involved in church activities as a leader. Strongly independent and focused on helping my children learn to read and answer homework questions.

Tell us about your life with ALS:
I have had to learn to rely on others to get things done. I am no longer in a leadership role in any organization but my own (Make a Joyful Noise). I no longer read bedtime stories to my children or help them with homework.

Tell us how ALS has brought new significance to any aspect of your life - family, attitude, hobbies/passions, career, etc.:
I have learned that although my voice is not as loud or understandable as it once was, I still, indeed have a voice. I have chosen to use that voice to bring attention to ALS. As I believe the more people we educate about ALS the more strength we have to fight for a cure for ALS.

 
 
 
 
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