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ALS: Anyone’s
  L
ife Story”
May 2007
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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

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Read other stories by clicking the date on the calendar.
Eric Barb

Name: Eric Barb

City, State: Olathe, Kan.

Age: 36

Family:
Lisa (spouse)
Ashley (daughter)
Megan (daughter)

Hobbies/Interests:
Internet, watching NASCAR, movies, watching the girls in their activities.

Date of ALS diagnosis: Diagnosed on our 7th wedding anniversary, May 22, 2000

Life before ALS: Before I was diagnosed, I was all about work and supporting my wife and kids.  My goals in life were of materialistic value: nice cars, new house, that sort of stuff.  I just assumed, like everyone does, that I would be around forever.

Life with ALS:I immediately quit work when I was told I had ALS.  My life has now gradually shifted from being independent to very dependent.  Everything about ALS is a test.  A test of strength, patience, courage, faith, ingenuity and did I say patience.

How has ALS brought new significance to your life: Having this disease has really opened my eyes to how precious life is.  It has made my relationship with my family stronger.  It has brought my wife and I to a whole new, loving relationship.  I believe it’s made me a better person.  It has really changed the way I view the world and what I value in it.

 
 
 
 
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