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ALS: Anyone’s
  L
ife Story”
May 2007
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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

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Read other stories by clicking the date on the calendar.
Aimee Chamernik

Name: Aimee Chamernik

City, State: Grayslake, Ill.

Age: 37

Family:
Jim (husband)
Nick (son, age 9)
Emily (daughter, age 7)
Zachary (son, age 3)

Hobbies/Interests: I am a passionate baseball fan and love the St. Louis Cardinals. I enjoy scrapbooking, photography, writing, Sudoku and baking cookies.

Date of ALS diagnosis: September 8, 2004

Life before ALS:Before ALS, my days were spent at the park, running errands, playing Wiffle ball in the backyard with my kids, making dinner, cleaning house, helping with homework – in short, doing what millions of other wives and mothers do every day. I ran and swam, volunteered in my children’s classes, served on the board of the preschool, taught Sunday School at our church, watched baseball whenever I could and ate too much guacamole.

Life with ALS:My life continues to be fulfilling, though our constant challenge is to maintain a normal routine despite the many obstacles ALS presents. I continue to be as involved as I can be with the kids’ schools and activities, and I do as much housekeeping and errand-running (via the Internet) as possible. I spend a lot of time writing, and I still eat too much guacamole.

How has ALS brought new significance to your life: My ALS diagnosis led me to an intense examination of my purpose in life. My first commitment is to my family – to creating wonderful memories with Jim and our children in the short time I have left, and raising our kids to be loving, compassionate and responsible people. My other commitment is to the ALS community – to doing all I can to ensure that there will be a day when no other families will experience the devastation of an ALS diagnosis by raising awareness and advocating for ALS research and services.

 
Read more about Aimee Chamernik:

FIRST PERSON SINGULAR: Talking To Your Kids About ALS (MDA/ALS Newsmagazine: Vol. 12, No. 4  April 2007)

 
 
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