MDA On the Record
Advocacy Statements

Letter from MDA and 58 organizations urging inclusion of rare disease as an area deserving "special consideration" in the Small Business Innovation Research (SBIR) program reauthorization – July 7, 2009

Letter from MDA’s President and CEO, Jerry Weinberg to Charlene M. Frizzera, Acting Administrator, Centers for Medicare and Medicaid Services, on competitive bidding and Medicare – February 12, 2009

Letter from MDA and 65 health care organizations to Chairman and Ranking Member of the Senate Committee on Appropriations and the Chairman and Ranking Member of the Senate Appropriations Subcommittee on Labor, HHS, and Education. – January 6, 2009

Letter from MDA and 30 health care organizations to House and Senate Leadership urging them include funding for small, research-intensive biotech companies in stimulus package – Dec. 19, 2008

Letter from MDA and 59 health care organizations on the reauthorization of the Small Business Innovation Research program – September 18, 2008
• To Speaker Pelosi and Congressman Boehner
• To Senator Reid and Senator McConnell

Call to Action Letter from MDA to SMA Families on the SMA Treatment Acceleration Act - May 2, 2008

Statement from MDA’s National Chairman, Jerry Lewis, on the introduction of the MD CARE Act Reauthorization – May 2008

Letters from MDA’s President and CEO, Jerry Weinberg, on the SMA Treatment Acceleration Act – April 10, 2008
• To Representative Kennedy
• To Representative Cantor
• To Senator Stabenow
• To Senator Isakson

Letter from Jerry Lewis on Medicare Competitive Bidding - October 3, 2007
• To Representative McCrery
• To Representative Rangel
• To Senator Baucus
• To Senator Grassley

Letter from MDA’s National Task Force on Public Awareness to Representative Allen on Medicare Competitive Bidding – July 6, 2007